You are not alone in carring your child with a rare metabolic disorder to term. This is what Tali’s mom has to say to parents who have been given an adverse prenatal diagnosis involving metabolic disorders:

“Of course we would never wish these problems on anyone, but God, in his infinite wisdom, has given us such a treasure in this little angel. We are certain that our lives are far richer for having her in them.”

    
Metabolic Disorder: Tali's Story    

If you have a Metabolic Disorder story to share, please submit it to us by contacting mary@prenatalpartnersforlife.org.

The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.

 

Metabolic Disorder Links:

Fatty Oxidation Disorders Support