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Rare Chromosomal Disorders Stories
You are not alone in carring
your child with a rare chromosomal disorder to term.
This is what Hannah’s mom has to say to parents
who have been given an adverse prenatal diagnosis of
a rare chromosomal disorder:
“We could have listened
to those doctors that told us to leave her alone and
let her die but we chose not to. Instead, we surrounded
ourselves with professionals with the same goals for
her that we have, people who are willing to fight for
her and I would never give that up. Further, we have
learned a lot about life through her eyes. We have learned
to be thankful for the little things in life and we
find a lot more joy in all of our children's developmental
milestones because we know that each one is a blessing
and not something to be taken for granted. We are truly
blessed to have Hannah in our lives!”
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Rare Chromosomal Disorders:
Hannah's
Story |
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Rare Chromosomal Disorders:
Sophia's
Story |
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Rare Chromosomal Disorders:
Gus's Story
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Rare Chromosomal Disorders:
Carsen's Story
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Rare Chromosomal Disorders:
Samuel was diagnosed triomsy 13 moasic by amnio,
however triomsy 13 was never found in his body.
At 18 months old he was diagnosed with partial monosomy
5q.
Samuel's
Story |
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If you have a Rare Chromosomal
Disorders story to share, please submit it to us by
contacting mary@prenatalpartnersforlife.org.
The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.
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