Jeannette Isabella's Story
Jeannette Isabella's Story Our daughter, Jeannette Isabella, was born with Trisomy 18. Doctors will
tell you that children with this affliction have little or no hope of
survival. Indeed, she died at 10 weeks of age. We brought her home from the
hospital at 3 days old, knowing that her days were limited. Her life brought
such light into our lives as we could have never imagined.
This little 4 lb. girl rarely saw her lovely cradle. We and our seven other
children held and cuddled this tiny infant for hours on end. She was tiny,
easy to handle, and hardly fussed. She loved to reach out and touch our
faces with her bent Trisomy hands. Her life was to date, and will be
forever, the greatest experience we have ever had as a family.
True that parents hope for a healthy child at birth and all the days
thereafter. But we do not know of a single parent who would trade their
child, healthy or otherwise, for any other child in the world. Jeannette was
Jeannette and, like all our other children, she was exactly who we wanted
the minute she arrived.
She touched our lives deeply and, for a child with no hope, she became, for
us, an icon of hope and love. And her short life touched so many other lives that,
though she did not spend long upon this earth, her funeral was packed. She
helped so many to hope that one day, with more Jeannetties, the whole world
might come to realize that all life, however long or short, is a precious
gift from God.
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-The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.