You are not alone in carring your child with Trisomy 18 to term. This is what Grace’s mom has to say to parents who have been given the adverse prenatal diagnosis of Trisomy 18:

"My experience was that she was a miracle, and not a diagnosis—she was just a little baby. I am so blessed that I had the support and faith to carry her. I know that in situations like ours the pressure to terminate is so very great. I thank God we didn't listen to the doctors the day she was diagnosed. We would have missed out on the blessing that she was. She is gently guiding me each and every day to reach out and let other moms know that there is hope.”

 
Trisomy 18: Peter's Story  

Trisomy 18: Colm's Story

The Rest of Peter's Story, 2013    
 

Trisomy 18: Eli's Story

 

Trisomy 18: Aaron's Story

     
 

Trisomy 18: Kammie's Story

 

Trisomy 18: Kayden's Story

     
 

Trisomy 18: Elizabeth's Story

 

Trisomy 18: Rose's Story

     
 

Trisomy 18: Emily's Story

 

Trisomy 18: Jeannette's Story

     
 

Trisomy 18: Rachel's Story

 

Trisomy 18: Regan's Story

Rachel and Regan - sisters with Trisomy 18
     
 

Trisomy 18: Grace's Story

 

Trisomy 18: Emma's Story

     
 

Trisomy 18: Claire's Story

 

Trisomy 18: Amee's Story

 

Trisomy 18: Abigail's Story

 

Trisomy 18: Michelle's Story

 

Trisomy 18: Emmy's Story

 

Trisomy 18: Brandon's Story

 

Trisomy 18: Amos's Story

 

Trisomy 18: Paige's Story

 

Trisomy 18: Amanda's Story

 

Trisomy 18: John Paul 's Story

 

Trisomy 18: Paxton's Story

 

Trisomy 18: Jordan's Story

 

Trisomy 18: Nathaniel's Story

 

Trisomy 18: Zakk's Story

 

Trisomy 18: Amanda's Story

 

Trisomy 18: Tre's Story

 

Trisomy 18: Hannah's Story

 

Trisomy 18: Giovanni's Story

 

Trisomy 18: Isabella's Story

 

Trisomy 18: Jenna's Story

 

Trisomy 18: Bella's Story

 

Trisomy 18: Savannah's Story

 

Trisomy 18: Ray's Story

 

Trisomy 18: Evy's Story

 

Trisomy 18: Eva's Story

  Trisomy 18: Lily's Story
 

Trisomy 18: Mariah's Story

 

Trisomy 18: Ray Josiah's Story

 

Trisomy 18: Ingebjørg's Story

 

Trisomy 18: Mara's Story

   

Trisomy 18: Thomas' Story

   
     

If you have a Trisomy 18 story to share, please submit it to us by contacting mary@prenatalpartnersforlife.org.

The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.

 

Trisomy 18 Links:

One Extra Chromosome

Trisomy18 information and support and the story of Grace Anne Nugent

Hope for Trisomy 13 and 18

SOFT- Support Organization for Trisomy

Now I Lay Me Down To Sleep (video)

A Tribute to Lucas

Trisomy 18 & Living: Kayden

Zakk Our Angel

Faces of Trisomy (video)

A Bittersweet Journey (video)

Kayden's Park

Kids with Trisomy Map

Trisomy Awareness Video-2011

A Letter To My Cousin

In Honor Of Caleb

Changing The Label-- Video

I Am The Face Of Trisomy 18 (a poem)

Rick Santorum--Family

Celebrate Everything--A Tribute To Caleb

Mary Pickles Charmed Everyone

Lethality Begets Lethality

Parents Fight For Son's Medical Rights

Lane Hauber's Story

Caleb--Our Forever Valentine video

Trisomy Awareness Video: What to expect when expecting a child with trisomy

We Are The World Of Trisomy 13 & 18 (video)

TAG, Trisomy Awareness Group

Study: "The Experience of Families with Children with Trisomy 13 and 18 in Social Networks

Caring For Children with Trisomy 13 and 18

Dr. John Carey discusses routine health care for T-18

"Celebrating Bella" by Rick Santorum

"Trisomy Angel" by Peter Baklinksi

Forever Her Perfect Boy

John Paul Robert

"Saints Among Us" by Rick Santorum

My Name Is Simon