This page lets us express how our hearts are touched by these special children, and their families' experiences.

Writings
Tribute To Mary A mother's eulogy for her precious daughter
Pope Benedict XVI's Cousin The Pope's opposition to euthanasia is personal, having a cousin with Downs who was taken by the Nazis.
Daughter will be loved... By Andrew and Louise Novecosky
Compassion Deficit Disorder By Kathy Ratkiewicz
Living With Anthony A Touching Trisomy 21 story featured on CNN.com
Austin The Evangelizer Words of wisdom by Father Bob
A Mother's Day Letter To Luke A mother's touching letter to her son, concluding with a prayer for comfort
A Mother's Journal More than 20 pages of one mother's insights and honest reflections through her brave journey (last updated 12/13/07)
Peter's Story Written for US Conference of Catholic Bishops
Letter To A Friend Ricky's mother shares her heart
Peter's Poem A poem with love from Peter's big sister
Hope In The Valley Of Tears Finding redemptive purpose in our suffering
Lucas Jacobson How a special needs child impacts those around him.
A Mother's Crown A touching and inspirational poem
The Journey A mother writes from the perspective of her little one, diagnosed with Trisomy 18.
Why Carry A Dying Child?
A Mother's Perspective.
From a mother who has lost two children and a nephew to anencephaly.
Letter to an Abortion Clinic A letter to an abortion clinic by one of its clients.
An Open Letter to Doctors A woman's plea to the medical community
Annie's Story One woman's story about her Trisomy 13 - affected daughter, Annie
Anthony's Eulogy A father's eulogy for his son
The Torch of Love One woman's story of how she was touched by a special child

 

Media
My Redeemer Lives Incredible video about the relationship between a father and son.... and God's relationship with us.
Patient Centered Care Site that discusses ethics and patient centered care
Fearfully & Wonderfully Made Prolife music video on YouTube
Nick's Testimony A young man born with no limbs proclaims Christ in extraordinary ways
Give Me A Chance Prolife song and video by Karl Kohlhase
Down Syndrome Association Video A video presentation from the Down Syndrome Association
Hidden Treasures A support site for families on the Trisomy 21 Journey, featuring a powerful video montage
Baby Annie

A touching video presentation set to music.

Baby Annie died in a world class Children's Hospital within 24 hours arrival at the age of 80 days. The events that transpired in those hours involved violations in health care Laws, hospital policies, professional codes of ethics and indeed there is a strong suspicion of criminal actions. The final medication report is missing and the narcotic cabinet reveals that over 30 times the amount of morphine ordered was removed from the cabinet, with none shown as wasted or returned.

The Coroner's Pediatric Death Review Committee determined that the care provided was not appropriate and that it was by no means certain that Annie needed stressful surgery or prolonged intubation. She was never on life support. A specific cause of death could not be determined so the Coroner determined that the death was due to "complications of trisomy 13".

Although the Chief of the Critical Care admitted that the actions of his staff were "unacceptable" and the hospital provided a written apology for  ineffective communication, effective and sincere plans for improvement could not be developed in collaboration with the hospital.

The United Nation's High Commissioner's Office became aware of the case and described many ratified conventions under which complaints could be made. Annie's family has made a complaint with Human Rights and appealed for a Coroner's Inquest with the support of many major disability groups.

All children, regardless of genetic disposition, deserve a chance if the family determines that it is in their best interest. Otherwise, they deserve a peaceful and dignified death. Annie was denied both.

Chad Elliston Story Story featured in "The Daily News" in Michigan
YouTube Video Austin's parents created a personalized video for the song, "Down The Road Of Bittersweet"
A Prayer Shower A downloadable PowerPoint presentation (about 5MB). You are invited to download the presentation, change the names and use it for your own Prayer Shower. Save this file to your desktop before opening it.
99 Balloons A touching video tribute to Elliot's 99 days of life.
"Choose Love. Choose Life." A video presentation defending life, set to "Amazing Grace".
Peter's Video Montage A video presentation set to the classic song "What a Wonderful World"
In Memory Of Fleur A video presentation from the mother of little Fleur (Flower in French), who was the inspiration behind the "The Little Girl Version" of the song "Down The Road Of Bittersweet"

Samuel Mabeus, A Gift from God

The Story of Samuel, a child diagnosed in-utero with trisomy 13 moasic who was carried to term against medical advice to be a beacon of light and hope for many.
Catherine's Montage Video montage a mother made in honor of her daughter with Down's Syndrome.
WCCO story WCCO story about reporter Maya Nishikawa's daughter, Mieko, who has Trisomy 18.
 

 

The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.