Support information & encouragement for carrying to term with an adverse prenatal diagnosis and support for raising your child with special needs after birth

NEW Spanish & English Brochures
are available here...

If you have come to this site because you or someone you know has received an adverse or negative prenatal diagnosis, you have come to the right place. We are parents who have gone through similar circumstances and we want to offer support. Most of the stories on this site are of families who have carried to term after receiving an adverse diagnosis. We are here to help you. You are not alone!

There are few things more frightening in life than finding out your baby may not be healthy. The fear of the unknown and the pressure to terminate can be intense. Many of us who were faced with similar diagnosis have had moments where we wished we were no longer pregnant or thought that we were incapable of continuing with the pregnancy. However, after time we fell deeper and deeper in love with our child. We have yet to hear from a parent who regrets carrying their child to term. We believe that each life is a precious gift from God and that each child has a special purpose.

MARCH IS TRISOMY AWARENESS MONTH

If you are a parent needing to contact us because of a negative or adverse prenatal diagnosis, please visit our Contact Us page. Someone will contact you as soon as possible.

If you are looking to volunteer or make a donation follow the Donate/Volunteer link to the left.

If you are a doctor or an organization that would like to be listed on our site please go to the Contact Us page and we will contact you as soon as we can.

If you are a parent who would like to share your story and be a mentor to help others, please Contact Us.

 

The support, information and encouragement provided by the PPFL parents is not meant to take the place of medical advice by a medical professional. Any specific questions about care should be directed to a health care professional familiar with the situation.

 

 

 10/26/09
NEW BOOK RELEASE!


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Kylee's Perspective added to Siblings

Nicholas' Story added to Spina Bifida and Hydrocephalus

Bella's Birthday added to Trisomy 18

Malachi's Story added to Trisomy 13

Josie's Story added to Congenital Heart Defects

Thomas' Story added to Trisomy 18

Addison's Story added to Sirenomelia

A Letter to Parents facing Agenesis of the Corpus Callosum added to Other

Amanda and Alayna's Story added to Twin Transfusions

Twin Transfusion video added to Twins

My Name Is Simon video added to Trisomy 18

PDF regarding Social Security Benefits for Children with Disabilities added to Links

Carly's Story added to Other (Angelman Syndrome)

John's Story added to Kidney Defects/Potter's Syndrome

Rose's Story added to Other (Agenesis of the Corpus Callosum)

Addison's Story added to Sirenomelia

Music Therapy Helps Premature Infants added to News

Saints Among Us added to Touching Our Hearts

John Paul Robert added to Trisomy 18

Forever Her Perfect Boy added to Touching Our Hearts

A Symphonic Dream by Karl Kohlhase added to Touching Our Hearts

Carly, When I Think of You added to Touching Our Hearts

Mara's Story added to Trisomy 18

Trisomy Angel added to Trisomy 18

Celebrating Bella added to Trisomy 18

Peter's Story (2013) added Trisomy 18

Tim Carney Article added to Touching Our Hearts

Kennady's Story added to Hydrocephalus

Dr. John Carey on T-18 added to Trisomy 18

A Child With Downs Syndrome added to Touching Our Hearts

When Bill Met Salley added to Downs Syndrome

Martell's Story added to Spina Bifida

Katia Rowe's Story added to HPE

Brotherly Bond added to Touching Our Hearts

Prolife Healthcare Alliance added to Links

Lydia's Story (video) added to Hydrocephalus

A Prayer Answered added to Touching Our Hearts

E:60 - Perfect added to Down Syndrom

Castan's Story added to Triploidy

Ben's SMA Story added to Other

The Value of "Imperfect" Children added to Touching Our Hearts

Nicolas Coke added to Anencephaly

The Blessed Life of Simon added to Touching Our Hearts

10 Year Old Blind Autistic Boy Sings "Open the Eyes of My Heart" added to Touching Our Hearts

The "Duty to Die" Advances added to Links

A Doctor's Ministry added to Physician's Page

Today's 'Paliative Care' Disrespects the Natural Law added to Links

Care of Infants with T-13 and T-18 added to Trisomy 13 and 18

Krista Horning's Testimony added to Touching Our Hearts

John Paul-Ours For A Time added to Anencephaly

A Study on T-13 and 18 Families added to Medical Professionals

Beautiful Boy! added to Touching Our Hearts

Elizabeth's Story added to Down Syndrome

Kannon's Video added to Down Syndrome

Audrey Grace's Story added to Down's Syndrome

Ingebjørg's Story added to Trisomy 18

Lisa's Story added to Rare Trisomies

TAG, Trisomy Awareness Group added to Links

Corrine's Story added to HPE and Congenital Heart Defects

We Are The World Of Trisomy 13 & 18 added to Trisomy 13 and Trisomy 18

Trisomy Awareness Video added to Trisomy 13 and Trisomy 18

Isaiah's Story added to HPE

Angelica Joy Story Video added to Touching Our Hearts

Jonathan's Video added to Touching Our Hearts

Breanna's Perspective added to Siblings

Monica's Perspective added to Siblings

Caleb--Our Forever Valentine Video added to Trisomy 18

Trisomy 13 Awareness Video added to Trisomy 13

Martin's Story added to Downs Syndrome

Being Peter's Sister added to Siblings' Perspectives

Lane Hauber's Story added to Trisomy 18

Lane Hauber's Video added to Trisomy 18

Gunnar's Story added to Rare Trisomies

The Devastating Choice added to Touching Our Hearts

Ean's Eulogy for his sister Gianna added to Siblings

Gabriel's Story added to Kydney Defects

Lethality Begets Lethality added to Trisomy 18

Mary Pickles added to Trisomy 18

God's Grace From Heaven added to Touching Our Hearts

Christopher Freeman story added to Trisomy 13

Having An Amnio Test Ruined My Life added to Second Thoughts

A Tribute To Caleb video added to Trisomy 18

Rick Santorum-Family video added to Trisomy 18

Catherine's Story added to Spina Bifida

Aaron's Story added to Early Birth

Conjoined Twins added to Touching Our Hearts

I am The Face Of Trisomy 18 (a poem) added to Trisomy 18

Changing The Label added to Trisomy 13

In Honor Of Caleb added to Trisomy 13

Disability And Quality Of Life added to Medical Professionals

The Role of a Pediatric Ethics Committee added to Medical Professionals

Choosing the Road Less Traveled added to Medical Professionals

Ray Josiah's Story added to Trisomy 18

Jessie's Story added to Anencephaly

"A Letter To My Cousin" added to Trisomy 18

Frankie's Story added to Downs Syndrome

Trisomy Awareness Video-2011

Kids with Trisomy Map

One Extra Chromosome

God Lives Under The Bed added to Touching Our Hearts

3/23/11
Kayden's Park added to Trisomy 18

3/23/11
An Extra Special Missionary added to Down's Syndrome

3/10/11
Caleb's Story added to Trisomy 13

2/9/11
High E Antibody added to Other

2/9/11
Mariah's Story added to Trisomy 18

2/9/11
Pediatrics Ethics Article added to Touching Our Hearts

2/9/11
Kayla's Reflection added to Kidney Defects

2/9/11
Lily's Story added to Trisomy 18

11/10/10
Austin's Story added to Congenital Heart Defects

11/10/10
Loren's Story added to Anencephaly

10/27/10
Karinne's Story added to Anencephaly

10/27/10
Heaven's Child (poem) added to Touching Our Hearts

11/27/09
Naomi, Emma, and Toby's Story added to Kidney Defects

10/27/10
Austin Beats The Odds added to Touching Our Hearts

10/25/10
Emma's Story added to Anencephaly

9/21/10
Eva's Story added to Trisomy 18

10/8/10
The New Eugenics added to Touching Our Hearts

9/21/10
Evy's Story added to Trisomy 18

9/21/10
A Life Like Yours added to Downs Syndrome

9/6/10
Ray's Story added to Trisomy 18

8/1/10
Beatitudes for Disabled People added to Touching Our Hearts

7/17/10
Tristan's Story added to Other: Thantaphoric Dysplasia

7/17/10
Jacob's Story added to Congenital Heart Defects

7/12/10
Bryce Daniel Video added to Touching Our Hearts

6/24/10
Angelica's Story added to Chiari 111 (Other)

6/23/10
Alphonso's Story added to Anencephaly

6/23/10
Loving Zeke added to Touching Our Hearts

6/21/10
A Letter From A Mother To Her Doctors added to Medical

6/2/10
When A Baby Dies added to Touching Our Hearts

5/24/10
Andrew's Story added to Early Loss (Other)

5/24/10
Gabriella's Story added to Walker Warburg Syndrome (Other)

5/21/10
Savannah's Story added to Trisomy 18

5/20/10
Bella's Story added to Trisomy 18

5/20/10
Sean's Adoption Story added to Downs Syndrome

5/20/10
James' Story added to Hydrocephalus

5/20/10
Thoughts On Carrying To Term added to Anencephaly

5/20/10
A Bittersweet Journey (video) added to Trisomy 18

4/22/10
Levi's Story added to HPE

4/16/10
Jenna's Story added to Trisomy 18

4/16/10
The Music of Opportunity added to Touching Our Hearts

4/12/10
A Special Day added to Touching Our Hearts

3/31/10
Little Sisters Disciples of the Lamb added to Downs Syndrome

3/31/10
Isabella's Story added to Trisomy 18

3/17/10
Leah's Story added to HPE

3/10/10
Emily's Story added to Downs Syndrome

3/10/10
Faces of Trisomy added to Trisomy 18

2/23/10
Giovanni's Story added to Trisomy 18

2/23/09
"It's Personal" added to Downs Syndrome

2/23/10
Maddy Curtis American Idol Audition added to Touching Our Hearts

2/8/10
Miracle Meagan added to Touching Our Hearts

1/21/10
Hannah's Story added to Trisomy 18

1/29/10
What Makes a Mother? added to Touching Our Hearts

1/21/10
Tre's Story added to Trisomy 18

12/31/09
Baby Without A Brain: A Miracle Story added to Anencephaly

12/16/09
Zakk Our Angel added to Touching Our Hearts

12/16/09
Meet the Miracle Baby added to Touching Our Hearts

11/24/09
"Misgivings" added to Touching Our Hearts

11/24/09
Amanda's Story added to Trisomy 18

11/24/09
Braylen's Story added to Kidney Defects

11/24/09
Trisomy 18 & Living (Kayden) added to Trisomy 18

10/26/09
My Redeemer Lives added to Touching Our Hearts

10/18/09
Zakk's Story added to Trisomy 18

10/17/09
Kseniya's Story added to Other (Amniotic Band)

10/13/09
Toby's Story added to Spina Bifida

10/1/09
A Tribute to Lucas added to Trisomy 18

9/28/09
A Family Faces Dwarfism added to Other (Dwarfism)

9/27/09
In Memory of Braylen Merck added to Kidney Defects

9/26/09
Choosing Thomas added to Trisomy 13

8/28/09
Flores de Marcela Video added to Touching Our Hearts

8/15/09
Gunner Health Care Video added to Touching Our Hearts

8/6/09
I Have A Voice added to Touching Our Hearts

7/21/09
Welcoming a Child Destined Soon To Die added to Touching Our Hearts

7/20/09
Emiline's Story added to Other (Fetal-Hydrops)

7/20/09
Francis' Story added to Other (Undiagnosed)

7/13/09
Thoughts of Gianna added to Touching Our Hearts